Happy 3 weeks to our little boy! It's hard to believe next week will be a month. When the dr called today, she said overall everything is looking good for Asher. His O2 requirement is down in a much better range 25-35 %, so that means the steroids did their job. His feeds are going well too! All of his antibiotics will be done tomorrow, and he will get the pick line in his foot out. These are all praises! She did mention that his PDA (hole in heart ventricle/murmur) is back a little, meaning it has opened up some and that is very common. She said it was small to medium in size, and they heard a murmur. (We already treated this once with meds a week or 2 ago.) However, she's not concerned about it right now and sees no reason to treat as long as he doesn't show signs of it affecting the rest of his body. One sign would be if his kidneys weren't getting enough blood and therefore his urine output was less, and right now that is all looking very normal and good. She wants to focus on good nutrition as that will help the lungs as well, so that is our focus. If we did treat the PDA again, either with meds or surgery, that would be a set back for Asher because he'd have to go off of feedings during that time.
So, please pray with us that he can continue getting a good amount of calories and feedings so he can put some weight on..and that the PDA does not cause any issues as it did before. Also, please pray the lungs continue to grow and stay healthy!!
Thank you!!!
Thankful for much good news! Continuing to lift all of you up to Jesus, that he may sustain you and strengthen each of you. Asher is bringing so much glory to our God!!!
ReplyDeleteI heard about Asher while listening to one of Matt Chandler's sermons online, and I saw the link to this blog from The Village facebook page. I am a Christian from Indiana, and I am not affiliated with The Village in any way, but when I heard him telling your story I couldn't help but shed tears of joy that Asher was alive. I've been lifting him up to God and will continue to pray for him. I am so happy to see that he is doing well, and I will continue to pray for you all. I have also thanked God for giving you Titus and for taking him home to be with Him. There must be so much pain as parents there, but what a beautiful gift I know he was! My wife and I have two young ones ourselves, and though we have never been through what you are going through, I can only begin to imagine being in your shoes. God has blessed you! He is in control, and I pray that He continues heal and nourish Asher. Thank you for staying faithful. I pray that God comforts you and continues to use you powerfully.
ReplyDeleteSincerely,
Brock Glaze - Muncie, Indiana
Greeting from Andrews,Tx. My son and daughter-in-law also had twins--1 lb. and 3.2 lbs so we know some of what you're going through--lots of ups and downs. She heard about you through Mothers of Multiples and asked us to pray. I've also asked my friends in Seminole to pray and they will pass it on. (Luke 11 and 18)Stay strong. You've got a sweet little soul to love.
ReplyDeleteHello Robyn,
ReplyDeleteMy husband LaPree serves with Bryan on the Greeting team and the both of us were at the hospital for one of your prayer sessions and attended the funeral of dear Titus. I wanted to let you two know about Ragan's HOPE, which is a non-profit, faith based organization devoted to supporting and stabilizing families during the catastrophic medical crisis of their child. I am the Executive Director and I would love to send our Director of Missions and Ministry, Delena Stuart-Watson to visit with you and Bryan so that we can begin to support all three of you on your journey. If you'd like to visit the website here it is : www.Raganshope.org. You can call LaPree to get in touch with me, Bryan has his number. We are praying for you all and so happy with Asher's progress! Praise God! Leanne Edwards