Baby Asher will be 25 weeks tomorrow and 2 weeks old Thursday! We got the results from his heart scan and the hole in the ventricle was so small they couldn't measure it! So, the medicine he took over the weekend worked, and it seems to not have left any side effects behind! Thank you Lord! However, as soon as we heard that good news..we were told more bad news. It seems this is the premie life. So, he has been requiring a lot of oxygen the past day or 2..too much of that over time causes damage to the eyes. He could get steroids to help the lungs, however those can cause neurological side effects that we will not know about until he's older. Every decision we make is like this..if you don't do anything, there are problems- and if you treat it, there are more problems. They are impossible decisions. Yet, we know we have to do the best with the information we're given, and in the end pray and pray some more and trust God will lead to us the right decision. He already knows what Asher's future holds. And we can't "mess" that up. He also has too much fluid in and around his lungs, and they will scan again tomorrow to see if that is better. They gave him something to help clear that. Friday, he has another brain scan to check for bleeds. We are thankful the first 2 brain scans were clear! Praying for that result again.
Every day it seems we see something a little different that's changed about him. Today we thought we saw more hair. It looks blonde..we'll see if it stays that way! He hasn't opened his eyes again for us, but that's because it's probably way too bright in there. He's used to total darkness inside me! But the nurses said if we leave a disposable camera up there, they will take pictures of things he does when we aren't there. We continue to thank the Lord for the sweet nurses there. One of our ante-partum nurses was working Saturday and during Titus' funeral, she sat with Asher and prayed with him. How amazing that she was looking out for our baby boy while we were needing to be focused on celebrating his brother. This made us feel so good especially since Asher had a scary night Friday. I'm convinced Baylor Grapevine has the best nurses! God knew what we would go through when we picked our doctor and this hospital. He knew what we would need. :)
Fighting and praying with you. I know that writing these updates is hard and can be exhausting, but I also know that your impact with these words is far reaching, and you will be so thankful for these posts in the days to come. Jesus is enough.
ReplyDeleteI only know of your family through the updates that Angela posts and after reading your blog I wanted to tell you both that I am praying for you and your family. We are blessed to serve a sovereign God who knows even the number or hairs on our heads...even blonde ones like Ashers. I love reading how God is drawing your family and many others to himself through Titus' and Asher's life. Cling to the cross and remember to pass your burdens to him. Praying....
ReplyDeleteYou are right...God is good and knows just what we need! Praying that you would continue to feel God's guidance, comfort and strength each day. And praying for your precious son, Asher, too! Hugs- Allison
ReplyDeleteYou are right...God is good and knows just what we need! Praying that you would continue to feel God's guidance, comfort and strength each day. And praying for your precious son, Asher, too! Hugs- Allison
ReplyDeleteStill praying for Mr Asher... I am also praying with great anticiipation for the day you can hold your beautiful son and kiss him! The Lord knows the day and I pray it will be soon!
ReplyDeleteI can't agree with you more about the nurses in the NICU at Baylor Grapevine. My daughter and son both spent time there. They are wonderful! My daughter's kindergarten teacher had a 1 lb 8oz baby girl there last year and they were wonderful for them too. She is about to celebrate her 1st birthday and is doing great. I pray for the same for your sweet baby boy!
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