So, if you haven't seen Facebook...we were told Thursday night we could possibly be moving to another hospital. Asher's heart echo showed some irregularities and the staff at Baylor felt it would be best for him to be in a place with pediatric specialists. They also felt like his symptoms were showing that the PDA was causing problems again..mainly for his kidneys. They really stressed the urgency of him getting surgery soon for his PDA/hole in the heart ventricle. So, we had to wait until Friday morning to know for sure if we were moving or not. Needless to say, Thursday was a stressful night! So, Friday morning we were told Asher would be moving, and we decided he needed to go to Children's. The Children's transport team came and the room quickly looked like a movie or an episode from Grey's Anatomy. There are some pictures above of this and then of him once he got settled in a Children's. I rode in the front of the ambulance and Bryan followed behind. It was not a relaxing ride! We went slowly because every little bump is something that could stress Asher out, his little body is just so sensitive! After what seemed like forever, we arrived at Children's and got him settled in his new room. It's a totally different experience and NICU, and we are quickly adjusting. There are several things there that are nice, and you can tell it's a hospital geared toward families, moms, and children. We will miss our friends at Baylor- we spent 2 months there between bed rest for me, and the 1st month of Asher's life. There are so many WONDERFUL nurses and doctors there..and they were hard to leave, especially for me! I think they are hard to leave for a lot of reasons, but especially because they were with us for this entire journey so far, and many were in the room when Titus passed away and have grieved with us. That is just such a tender experience to share. But, we know Children's is where Asher needs to be and we are so thankful to live close to such a great hospital that can do anything and everything he needs. We know God has placed us at a new hospital for bigger reasons than Asher's care, and we trust that!
After we arrived and they started doing their own assessments of Asher, it seemed as though no one was in hurry any more to do the PDA/heart ventricle surgery. It's hard to constantly wonder if you are about to be in a stressful situation or if things will stay calm. Everything in your mind and emotions is heightened during that time..it's hard to describe, and basically it's stress but none like I've ever experienced before! That's been our whole journey so far with Asher, but we have had good stretches of days (maybe 4 ) where nothing "big" is going on and those stretches of days are SO nice. We pray and hope for more of those days!
Today we were told he's doing better, his kidneys look better and he's breathing fine. He's actually back on the si pap (similar to cpap) because his tube, again, came out last night! That's the 4th time this week! So, the cardiologist feels he will have surgery..and soon, it's just not urgent at this time. So, most likely at the beginning of the week. We are ready to get it done if that's what he needs, but at the same time we are thankful for another day without that stress added to it. Thank you so much for prayers!!
Ps- I LOVE seeing Asher on his tummy- he looks so peaceful and cute! :)