Asher has had some issues with spitting up thick, clear mucous since we got back to Baylor. It's caused him to not really get to bottle feed much at all. It's been something that we've watched the last week to see if it resolves. Then, last night his feeding tube came out, and they could not get it back in. This morning he had a swallow study and they found a definite blockage in his esophagus. They did not have the capability to do a scope to really see what it is, so...we had to go back to Children's today. After getting there today, they also tried (with u/s guidance) to put the feeding tube back in his throat and down to his stomach but they could also not get it by the blockage. So, the plan was to have a stomach scope in the morning. Well, then we were called late tonight and told the dr who does those won't be there to do it until Wednesday. So, Asher's been on IV fluids since 2 am this morning..and will continue to be until Wednesday. This is a little frustrating because now he's much more aware of not eating than he was when we had to do this all the time when he was smaller. He was getting very agitated today before we left and cried louder than I've ever heard him! (We have been told over and over again that he has a great temperament and doesn't complain much.) So, we just feel so bad for him. He's been so good and patient all day today with 2 procedures, plus moving hospitals. He's such a good sport, and tough boy.
Please pray they find out what this blockage is, and can fix it..so he can get his tube back down to eat--and then hopefully we can start getting him back to learning to eat from a bottle. He was starting to do well at it, but this issue was hanging him up and we just didn't know it was there. Please pray for us to be patient and trust the Lord's plan..especially me as it's hard to watch him get upset and then chomp down on his paci and suck it so hard... I just know he wants some food and I can't give it to him!! Thanks so much for your prayers!!
Asher back at Children's..and being very patient with all he's had to do today. :(
Hi Robyn- I haven't met you, but heard about your sweet family at The Village a good while back. Please know my husband and I have been praying for you guys and will continue to do so. We have had our battles with fertility as well. We are also fellow Red Raiders and loved finding out y'all are too by the pics of Asher in his precious Tech gear. Praying for healing, strength, and comfort.
ReplyDeleteWe will be praying for sweet Asher and for the drs to figure out what is causing the blockage.
ReplyDeleteWe'll be praying for Asher!
ReplyDeletePraying for Asher and you, too. It is so hard to watch your child struggle. :( Faith (my daughter) also had to be taken off food when she wasn't digesting well. It was VERY hard to watch her be uncomfortable and then not be able to do anything. My tears flow remembering those days--the days you are walking now. Hang in there. Praying for speedy recovery!
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