The decor was SOOO cute!
My beautiful mom!
Wonderful hostesses
Yes buddy..you definitely were!
Mother's Day Pics
My Mother's Day gift from Asher
Yummy meal on the patio!
Mama Gail holding Asher for the first time!
Aunt Kandace holding Asher!
Dig Dig holding Asher- he loved getting held by everyone!
It was a very nice, calm weekend! We are praying for more "calm" for Asher now that his feeding tube is back down. Please pray with us that it stays in. If it comes out (more likely since its in his mouth), then he will probably have to get a g-tube. This would be a surgery..and possibly a more long term eating method. It is more important that Asher gets to eat...but we would really love for him to get back to working on eating from a bottle and not have to worry about feeding by g-tube. But, we know God is in Asher's future, and he's taking care of whatever will happen. We trust that. We just beg for his mercy on Asher's little body that has been through so many battles.
I read a friends blog the other day who also has a 23 weeker, now a year old..and she had a video of them at the park with her son in a swing. She said they probably looked like any mother and son at the park, but they weren't. It was their first time to do that, and they both knew how hard they had to "fight" to get to that normal moment of swinging in the park. Reading that pricked my heart. I know that feeling...I'm in that battle and am, in some moments, feeling like those days are getting farther and farther away. And I'm so thankful for the many people who are battling with us, who are faithfully asking God for his help and mercy on Asher's behalf. We still can't say thank you enough. I don't want much, I don't have huge expectations, I don't think...I just want to have my baby at home without wires and tape all over him. I just want him to be able to eat. I'm a little bit over not getting to take him anywhere for a year at the moment...this puts a lot in perspective. I just want him to feel well, to not struggle to achieve things other babies do without effort, and to thrive. I want the best for the son I am falling more and more in love with every day. It's been a slow process, but the older he gets, the more like a "real baby" he gets..the more impatient I get for our life at home together to begin. All these things I want, but God knows what I need. I was thinking about Asher wanting food so much the last few days, and how we haven't been able to give it to him because we know the "whole story" or we see the "whole picture"-- Asher doesn't know or have the ability to understand why he couldn't eat. He just had to trust us, and be patient and find happiness in his pacifier and in us comforting him! So, I know sometimes God doesn't give us things exactly when we want them because he can see the bigger picture. He knows what we NEED. So, we have to do the same as Asher..be patient trust Him, and appreciate what we DO have. Just as Asher had to appreciate the paci and his mom and dad trying to comfort him. Gosh, just barely 38 weeks gestation and 14 weeks old and he's teaching us so much.
Everything Asher and Bryan and I get to do together after he gets home will be sweeter, and deeper than we had ever imagined. Taking him home...will be a sweet, sweet day. I had to remind myself tonight that 6-8weeks is really nothing in the span of 18 years of being a child. It seems FOREVER right now. We are so tired of hospitals. But it's a blip. That's what I have to remember. Just as the "one pound" days passed..this too, will pass.
Lord, thank you for allowing Asher to grow past 4lbs and for healing his lungs! Thank you for the AMAZING support and prayers from friends, family, new friends, and even strangers. Thank you Lord for creating and sustaining Asher in the womb for 23 weeks, and now for 14 weeks outside of it. YOU are the Great Healer and we are so thankful. Please continue to have mercy on Asher's body and heal his esophagus and allow him to eat again by mouth some
day soon. :)
Amen.
Robyn,
ReplyDeleteMy son, Gabriel, was a 30 weeker, born with a GI abnormality and Down syndrome. We spent 94 days in the NICU and went home on oxygen and a g-tube. He will be 2 in September and still has the g-tube. I just want to encourage you that both of those are easily manageable. I had the same desires to have my son home with me without the tubes and wires, but the Lord knows infinitely more than we do, thankfully. If it comes to a g-tube, I would love to meet with you. I learned SO MUCH more from an online community of tube-fed parents than I did from the nurses and surgeon. Frankly, I don't even know how to bottle feed my son, it's so second nature :) God is good and will provide.
Katelyn Rauch